DIACOMIT is the only FDA-approved antiseizure medication specifically for seizures associated with Dravet syndrome in children as young as 6 months. It is indicated for patients weighing 15 pounds or more and taking clobazam.
When you’re navigating a Dravet syndrome diagnosis and treatment journey, it’s hard to know where to start. Our expanding collection of resources is designed to help you determine whether DIACOMIT® (stiripentol) is right for your loved one and what steps to take next.
Learn how to access treatment with DIACOMIT, read more about Dravet syndrome, and find support groups to connect with other families affected by Dravet syndrome.
Considering DIACOMIT? Use this guide to help you initiate a conversation with your child’s doctors to determine if DIACOMIT is the right fit for their treatment plan.
Download Discussion GuideA quick overview of DIACOMIT, including seizure reduction results, convenient dosing information, and access programs.
Download Caregiver’s GuideReview important information about how to administer DIACOMIT, including the proper dosage and storage tips.
Download Medication GuidePatients and caregivers share their Dravet diagnosis and DIACOMIT treatment journeys.
Tatiana’s journey to get her daughter properly diagnosed with Dravet syndrome was challenging. Learn how Eliana’s family worked tirelessly to find an effective seizure treatment for her.
Duane and Daryl, Julia’s parents, share how DIACOMIT has made a substantial difference for their daughter.
Follow Kendall’s long-term seizure management journey with DIACOMIT as told by her mother and caregiver, Jill.
Hear from Dravet syndrome experts about their DIACOMIT experience.
For Dr. Wheless, DIACOMIT is one of the first medications he considers after confirming a Dravet diagnosis. Find out why!
Pediatric epileptologist Dr. Sullivan details his 10-year journey with a patient with Dravet syndrome — and how DIACOMIT has substantially reduced his patient’s seizures.
An educational resource developed with the Dravet Syndrome Foundation and Dravet physician experts to equip parents and caregivers of children with Dravet syndrome with information about this rare disease.
Download Information BookletA story for siblings of children with Dravet syndrome inspired by actual families and their experiences.
Download Comic BookFounded in 2009 by a group of parents of children with Dravet syndrome, DSF supports families and funds research to find a cure.
View Foundation WebsiteThe DSF Family Network organizes parent support groups across the U.S. It is open to families that are interested in accessing advocacy services and programs.
Join the NetworkAn annual event for patients and their families to come together to learn about research and treatment options.
Learn More About Day of DravetFor over 50 years, the Epilepsy Foundation has promoted education, policy, research, and systemic change to foster measurable and sustainable improvement for all people living with epilepsy.
View Epilepsy Foundation WebsiteA patient advocacy organization committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and patient services.
View NORD Website
