Resources
When you’re navigating a Dravet syndrome diagnosis and treatment journey, it’s hard to know where to start. Our expanding collection of resources is designed to help you determine whether DIACOMIT® (stiripentol) is right for your loved one and what steps to take next.
DIACOMIT and Dravet Syndrome Resources
Learn how to access treatment with DIACOMIT, read more about Dravet syndrome, and find support groups to connect with other families affected by Dravet syndrome.
About Treatment With DIACOMIT
Discussion Guide
Considering DIACOMIT? Use this guide to help you initiate a conversation with your child’s doctors to determine if DIACOMIT is the right fit for their treatment plan.
Download Discussion Guide
A Caregiver’s Guide to DIACOMIT
A quick overview of DIACOMIT, including seizure reduction results, convenient dosing information, and access programs.
Download Caregiver’s Guide
Our Dravet Journey
Hear about a mother’s journey to get her daughter properly diagnosed with Dravet syndrome and how her family worked tirelessly to find effective seizure treatment.
Medication Guide
Review important information about how to administer DIACOMIT, including the proper dosage and storage tips.
Download Medication Guide
Other Dravet Syndrome Resources
Navigating Life With Dravet Syndrome
An educational resource developed with the Dravet Syndrome Foundation and Dravet physician experts to equip parents and caregivers of children with Dravet syndrome with information about the condition.
Download Information Booklet
Dravet Syndrome Foundation (DSF)
Founded in 2009 by a group of parents of children with Dravet syndrome, DSF supports families and funds research to find a cure.
View Foundation Website
DSF Family Network
The DSF Family Network organizes parent support groups across the U.S. It is open to families that are interested in accessing advocacy services and programs.
Join the Network
Day of Dravet
An annual event for patients and their families to come together with other families to learn about research and treatment options.
Learn More About Day of Dravet
Epilepsy Foundation
For over 50 years, the Epilepsy Foundation has promoted education, policy, research, and systemic change to foster measurable and sustainable improvement for all people living with epilepsy.
View Epilepsy Foundation Website
National Organization for Rare Disorders
A patient advocacy organization committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and patient services.
View NORD Website