Guidance and support
Resources for patients and caregivers
Take advantage of our expanding collection of resources. Families can learn how to get access to treatment with DIACOMIT, read about Dravet syndrome, discover new ways of helping their child navigate life, and find support groups to connect with other families affected by Dravet syndrome.
Not actual patients
Building a support system
Managing a rare disease like Dravet syndrome can cause caregivers and families to feel lonely and isolated. Seeking support and community from friends, family, or other caregivers can help when times are difficult or when they need a reminder of their successes.
About Dravet syndrome:
DIACOMIT background and clinical data:
Chiron C. Stiripentol for the treatment of seizures associated with Dravet syndrome. Expert Rev Neurother. 2019:19(4):301-310. doi: 10.1080/14737175.2019.1593142. Epub 2019 Apr 2.
Chiron C, Marchand MC, Tran A, et al. Stiripentol in severe myoclonic epilepsy in infancy: a randomised placebo-controlled syndrome-dedicated trial. STICLO study group. Lancet. 2000;356(9242):1638-1642. doi: 10.1016/s0140-6736(00)03157-3.
Cross JH, Caraballo RH, Nabbout R, Vigevano F, Guerrini R, Lagae L. Dravet syndrome: treatment options and management of prolonged seizures. Epilepsia. 2019;60(3):S39-S48. doi: 10.1111/epi.16334.
Wirrell EC, Laux L, Donner E, et al. Optimizing the diagnosis and management of Dravet syndrome: recommendations from a North American Consensus Panel. Pediatr Neurol. 2017;68(3):18-34. doi: 10.1016/j.pediatrneurol.2017.01.025. Epub 2017 Feb 4.
Wirrell EC, Laux L, Franz DN, et al. Stiripentol in Dravet syndrome: results of a retrospective U.S. study. Epilepsia. 2013;54(9):1595-1604. doi: 10.1111/epi.12303. Epub 2013 Jul 12.